Kingsbrook Jewish Medical Center

Centers of Excellence

Stroke Recovery Caregiver Handbook

Table of contents

Introduction

Section 1

The Brain and Stroke

1.1 How the brain works

1.2 Understanding stroke and TIA

1.3 5 warning signs of stroke

1.4 Risk factors for stroke

1.5 Effects of stroke

1.6 Stroke recovery

Section 2

The Interprofessional Care Team

Section 3

Communicating with Stroke Survivors

3.1 Communication

3.2 Specific communication impairments

3.3 Cognitive communication impairments

Section 4

Identifying post-stroke pain in stroke survivors

4.1 Defining pain

4.2 Facts about pain in stroke survivors

4.3 Central post-stroke pain

4.4 Hemiplegic shoulder pain

4.5 Shoulder subluxation

4.6 Spasticity

4.7 Shoulder or Hand syndrome

4.8 Other shoulder and arm conditions

4.9 Identifying pain in stroke survivors

Section 5

Helping Stroke Survivors with Cognitive Problems

5.1 Attention

5.2 Orientation

5.3 Memory

5.4 Insight

5.5 Judgment

5.6 Impulsivity

5.7 Sequencing

5.8 Problem solving

Section 6

Helping Stroke Survivors with Perceptual problems

6.1 Time awareness

6.2 Spatial relations

6.3 Visual neglect

6.4 Unilateral body neglect

6.5 Apraxia

6.6 Perseveration

6.7 Vision problems

Section 7

Managing Post-Stroke Depression

7.1 First reactions

7.2 Later reactions

7.3 Post-stroke depression

7.4 Signs of post-stroke depression

7.5 How you can help

Section 8

Strategies to Deal with Behavior Problems Post-Stroke

8.1 Personality changes

8.2 Emotional Lability

8.3 Social isolation

8.4 Anger and aggression

8.5 Lethargy (lack of interest)

8.6 Social judgment

Section 9

Mobility, Positioning and Transfers

9.1 Moving after a stroke

9.2 Assisting with mobility

9.3 Positioning

9.4 Transfers

9.5 Wheelchair use

9.6 Walking

9.7 Assistive devices

9.8 Arm support

Section 10A

Medication management

10.1 Types of medications

10.2 Understanding the prescription

10.3 Medication reconciliation

10.4 Common medication problems

10.5 Questions to ask about medication management

Section 10B

Bladder and Bowel Management

10.1 Normal bladder function

10.2 Stroke and loss of bladder control

10.3 Stroke and bowel function

10.4 Managing bladder and bowel problems

10.5 Strategies for managing urinary incontinence

Section 11

Maintaining Proper Hydration

11.1 Daily fluid requirements

11.2 Dehydration and stroke

11.3 Learn how to live with Diabetes

11.4 Get routine care to stay healthy

11.5 Things to remember

11.6 My Diabetes care card

11.7 I can control my Diabetes by working with my health care team

Section 12

Meal Maintenance and Special Diets

12.1 Eating and swallowing after stroke

12.2 Consequences of eating and swallowing problems

12.3 Observing signs and symptoms of swallowing problems

12.4 Management of swallowing problems

12.5 Assistive devices for meals

12.6 Oral hygiene

Section 13

Activities of Daily Living

13.1 Stroke and daily routines

13.2 Toileting

13.3 Bathing

13.4 Grooming

13.5 Dressing

Section 14

Skin Care and Hygiene

14.1 How stroke affects skin

14.2 Cleaning the contracted hand

14.3 Hygiene and incontinence

Section 15

Identifying and Planning Leisure Activities

15.1 The importance of leisure activities

15.2 Meaningful leisure activities

15.3 What you can do to help

15.4 Community resources and information

15.5 Assistive devices

Section 16

Impact of Stroke on Survivor’s Family

16.1 What you can do to help

16.2 Stresses on the informal caregiver

Section 17

Legal, Finance and Health Coverage

17.1 First things first: determine what documents your loved ones need

17.2 Financial assistance

17.3 Prescription drug costs